CAPCMSSSM.ORG 2008


The Center to Advance Palliative Care (www.capc.org) provides health care professionals with the tools, training and technical assistance necessary to start and sustain successful palliative care programs in hospitals and other health care settings. CAPC is a national organization dedicated to increasing the availability of quality palliative care services for people facing serious illness. Direction and technical assistance are provided by Mount Sinai School of Medicine.

 

American Hospital Association Circle of Life Award
www.aha.org/circleoflife
Presented annually to recognize outstanding initiatives to improve end-of-life care. 

 

Community-State Partnerships to Improve End-of-Life Care Midwest Bioethics Center
www.midbio.org
Provides grants to support statewide coalitions composed of citizens, health care professionals, educators and policymakers that identify problems, make recommendations and build public support for practical policies, regulations and guidelines to improve care of the dying. Publishes State Initiatives in End-of-Life Care.

 

Dying Well
www.dyingwell.org
Resources and referrals to organizations, Web sites and books to empower persons with life-threatening illnesses and their families to live as fully as possible during the dying process. Provides link to the Missoula Demonstration Project, which demonstrates a community-based approach to end-of-life care.

 

Education for Physicians on End-of-Life Care (EPEC)
www.epec.net
Educates physicians, through its core curriculum, on essential clinical competencies required to provide quality end-of-life care.

 

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    End-of-Life Nursing Education Consortium (ELNEC)
    www.aacn.nche.edu/elnec
    A comprehensive national education program to develop a core of expert nursing educators and to coordinate national nursing efforts in end-of-life care.

     

    End-of-Life Physician Education Resource Center (EPERC)
    www.eperc.mcw.edu
    Assists physician educators and others in locating high-quality, peer-reviewed training materials. Visitors to the site can search for educational materials indexed by end-of-life care topic areas and educational formats.

     

    Growth House: Guide to Death, Dying, Grief, Bereavement and End-of-Life Resources
    www.growthhouse.org
    Search engine offers access to the Internet’s most comprehensive collection of reviewed resources for end-of-life care.

     

    Innovations in End-of-Life Care
    www.edc.org/lastacts
    On-line journal features peer-reviewed examples of promising practices in end-of-life care. Each bimonthly issue focuses on a different theme.

     

    Last Acts
    www.lastacts.org
    A national coalition to improve care and caring near the end-of-life. The goal of the coalition is to bring death-related issues out in the open and help individuals and organizations pursue better ways to care for the dying.

     

    Medicaring
    www.medicaring.org
    What is MediCaring? Until recently, few people survived with serious illness for any substantial period of time. People either died or improved. Now, however, serious chronic illness averages more than a few years at the end of life for Americans. MediCaring is the term we use for the idea that the health care system in the United States could find the patients who are living the end of life with serious and complex illness, tailor services to their priorities, and pay providers in a way that encourages quality care at a price that is tolerable to the community.
    If you are a health care provider working on quality improvment, use our automated referral system to contact organizations that can help you.

     

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    National Hospice and Palliative Care Organization
    www.nhpco.org
    www.hospiceinfo.org
    The National Hospice and Palliative Care Organization is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones. The Center to Advance Palliative Care is committed to work collaboratively with NHPCO to achieve these goals.

     

    On Our Own Terms: Moyers on Dying
    www.thirteen.org/onourownterms
    Supports the On Our Own Terms outreach campaign with various tools, articles, personal stories, audio and video clips, and interactive opportunities.

     

    Partnership for Caring: America’s Voices for the Dying
    www.partnershipforcaring.org
    National non-profit organization devoted to raising consumer expectations and demand for excellent end-of-life care. Offers resources for talking about end-of-life choices, the process of health care agency and state-specific advance directives.

     

    Project on Death in America
    www.soros.org/death
    Dedicated to understanding and transforming the culture and experience of dying and bereavement through initiatives in research, scholarship, the humanities and the arts, and to fostering innovations in the provision of care, public education, professional education and public policy.

     

    Promoting Excellence in End-of-Life Care
    www.promotingexcellence.org
    Manages 22 grant-funded projects designed to demonstrate excellence in end-of-life care in diverse institutional settings. The project is a National Program Office of The Robert Wood Johnson Foundation, headquartered in Missoula, Montana.

     

    The RAND Center to Improve Care of the Dying
    www.rand.org/organization/health/dying.html
    Conducts research designed to improve a system of care in which persons with serious and eventually fatal chronic illness can live comfortably and meaningfully until death.

     

    Supportive Care of the Dying
    www.careofdying.org
    Develops and tests innovative projects with individuals and organizations working to improve delivery of care to those facing the end of life. Videos and facilitator guides are available to help improve physician communication with patients and families.

     

    Toolkit of Instruments to Measure Care at the End of Life
    www.chcr.brown.edu/pcoc/toolkit.htm
    An authoritative bibliography of instruments to measure the quality of care and quality of life for dying patients and their families.